A Journey of the Heart

We had an appointment with a parade of specialists from UAMS and Arkansas Children's Hospital yesterday to address the questionable ultrasound pictures we've seen over the past few weeks.  The investigation began about a month ago when our regular obstetrician's visit revealed potentially unusual placement and size of Ava's digestive organs.  From what the doctors have concluded thus far, her ability to digest and thrive from what she is digesting seems to be unhindered.  However, a precautionary look at the rest of her organs flagged a possible growth-related issue concerning her heart.  We were then scheduled to return to the high risk specialty clinic for further ultrasounds and an echocardiogram, followed by a visit with a pediatric cardiologist and a high risk pregnancy specialist.

According to the cardiologist's assessment of the views provided, the left ventricle of Ava's heart is slightly undersized, which has likely affected the growth of the aorta that loops above it.  While this causes no problem in the womb because of the heart's greater dependence upon the right ventricle and a temporarily intact ductus arteriosus, shortly following birth the ductus arteriosus closes and the heart begins to rely more heaily upon the left ventricle.  

Since it isn't possible to measure the effectiveness of her left ventricle until after she's born, our medical team is making arrangements for her delivery to be scheuled as an induction at UAMS in order to have her immediately dosed with medication to extend the life of the ductus arteriosus and have her transported to Arkansas Children's Hopital. From what I understand, after that point we'll have to see how lefty does its job and if there is any hardship to the mitral valve that depends on it.  If its processes are sufficient, that would be ideal.  If they aren't, a series of surgeries may happen for her.

I know that this update might seem like a sudden turn of events on this blog, but I've been hesitant to record these details of our precious daughter's development because, frankly, I've been to afraid to face what these complications might mean in her fragile life.  Now that the things she might be dealing with seem somewhat clearer and the shock of all these appointments is fading, I understand that NOW is the time to relinquish our paralyzing fears and ask for unceasing prayer for our daughter, the medical team, and everyone we know that our family will depend on during Ava's early life.  

Anyone who knows Jason and I well enough knows that we're a very self-reliant little team.  It's going to be a big adjustment to have to depend on the expertise of others for the sake of our girl's health.  While we'll move heaven and earth to insure she has access to the BEST care, we are aware that every miracle that's possible is in our Heavenly Father's hands and that He above all should receive the praise for every victorious moment of her impending battle. We know that none of this is a mistake on His part... It will be our blessing to love and protect her.

We love you, Perfect Girl.  Mommy and Daddy and all your grandparents are busy preparing for you to come home healthy and strong.  We have faith that God will show His mightiness through you.